COVID-19 Update

March 25, 2020

In the face of the challenges posed by the current COVID-19 pandemic, LDRTC is continuing to serve the Rare Disease community by maintaining the medical services offered to our patients with Lysosomal Disorders, Immune deficiencies, and other rare diseases. We remain fully operational to administer infusions and injectable therapies at our Infusion Clinic. Clinical Trial protocols for many life-saving therapies are similarly moving forward without any interruption.

 

Our utmost concern is to protect the health and wellbeing of our patients, and maintain the safety of our staff, while continuing to deliver the level of service and reliability you count on from LDRTC.

 

Some of the measures we implemented during these extraordinary times include

  • A reduced day and a staggered clinic schedule to ensure that premises are thoroughly cleaned and disinfected.
  • Screening all patients both with a questionnaire and temperature checks prior to entering the treatment facility.
  • Not allowing patients or visitors to congregate at the waiting room.
  • To reduce the foot traffic, we kindly ask patients not to bring any company, and minors to be accompanied by one parent only, who are also screened. Very young infants may require both parents’ care.  
  • Providing private rooms and also private bathrooms if possible, during their visit.

 

In addition, we closely monitor our staff’s health and provide an extended break to monitor themselves prior to the start of clinic’s weekly schedule.

 

Please let us know whether we could be of further help by utilization of remote health and Telemedicine services. You may contact us via email at This email address is being protected from spambots. You need JavaScript enabled to view it. or by phone at +1 703-261-6220.

 

Respectfully,

 

Ozlem Goker-Alpan, M.D.

Lysosomal & Rare Disorders Research & Treatment Center (LDRTC)

Fairfax, VA

Lysosomal Research Center

Lysosomal and Rare Disorders Research and Treatment Center
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Lysosomal Research Center

We are a 501(c)(3) non-profit organization and our mission is to provide high quality care for individuals with lysosomal storage diseases and other rare disorders by utilizing a variety of clinical treatment and research protocols, conduct training programs to increase awareness and to offer compassionate care and platform for the families affected by these debilitating disorders.

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