About US

Committed to revealing the best practices in management and treatment of lysosomal disorders

About us

About our Journey

LDRTC was founded in 2013 by Dr. Ozlem Goker-Alpan with a vision to provide high quality care for individuals with lysosomal storage diseases and other rare genetic disorders.  Dr. Ozlem Goker-Alpan is a world-renowned authority in the field of lysosomal and other rare genetic disorders and is well known for her dedication to the health and well-being of her patients and families. 

Mission & VIsion

Research to unravel underlying disease-causing mechanisms, discover new biomarkers and explore new therapeutic pathways and treatment options. Education for patients, families, healthcare providers and researchers in the field. Treatment and clinical care to persons suffering from Lysosomal and other Rare diseases.

LDRTC utilizes a variety of clinical treatment and research protocols, conducts training programs to increase awareness and offers compassionate care and platform for the patients and families affected by these debilitating disorders.

OUR BOARD

Experts in Lysosomal Disorder Research

Ozlem Goker-Alpan, MD
FounderOzlem Goker-Alpan, MD
Dr. Ozlem Goker-Alpan is the founder and CEO of LDRTC. Dr. Goker-Alpan founded LDRTC in 2013 with a vision to provide high quality care for individuals with lysosomal storage disorders and other rare diseases by utilizing a variety of clinical treatment protocols, multi-specialty clinics and research protocols. She received her MD degree in 1990 from Marmara University School of Medicine in Istanbul, Turkey with the highest honors as first in her class. She trained in Pediatrics and then served as a Pediatric Chief Resident at SUNY at Stony Brook, New York. She completed her first fellowship in Clinical and Biochemical Genetics at the National Institutes of Health, Greater Washington Medical Genetics Program in 1999, and worked as an adjunct scientist at the National Child Health Institute. Her second fellowship focused on Lysosomal Storage Disorders and Gaucher disease at the Clinical Neuroscience Branch, NIMH. She coordinated the NIH Gaucher Clinic at the Medical Genetics Branch of the National Human Genome Research Institute until her departure from the NIH in December, 2009.
Margarita Ivanova, Ph.D
PresidentMargarita Ivanova, Ph.D
Margarita Ivanova, is a molecular biologist at LDRTC, where her work focuses on translational research related to lysosomal storage disorders and rare diseases. She is a principal investigator conducting studies focused on molecular mechanism of lysosomal abnormalities, autophagy, mitochondrial function and enzyme replacement therapy. She directs the next-generation sequencing facility.
Uyen-Sa Beese
TreasurerUyen-Sa Beese
Uyensa Beese is the treasurer and administrator of LDRTC, where she manages financial aspects of all projects from commencement to completion. She also acts as Patient Liaison officer and is highly involved in facilitating patients’ visits to LDRTC and offering support to the affected families. She holds B.S. degree in Business from the GMU and has experience as Patient Liaison in the clinical set up since 2011.
Renuka Pudi Limgala, Ph.D
SecretaryRenuka Pudi Limgala, Ph.D
Renuka Pudi Limgala is the Lead Research Scientist at LDRTC. She leads multiple investigator initiated studies and participates in various clinical and translational research projects including studies on immune dysfunctions in lysosomal storage disorders (LSDs) and a large-scale screening program for LSDs in minority populations in the USA. She has extensive experience in designing and executing multi-parameter flow cytometry panels for immune phenotyping and other in vitro assays. After obtaining Ph.D. at Indian Institute of Science, she was a post-doctoral/Research fellow for 7 years at National Cancer Institute, National Institutes of Health, Bethesda, MD. She authored several full length publications in peer reviewed scientific journals and presented her work at many international scientific conferences.
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3959 Pender Drive, Suite 100,
Fairfax VA 22030

  • dummy+1 703-261-6220

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