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UPDATE March 17, 2020

VERY IMPORTANT MESSAGE FOR OUR PATIENTS

March 17, 2020

Dear Patients and Family Members,

With the emergence of COVID-19 pandemic, our patients and their families are understandably unsettled about its implications for their health and well-being.

We suggest that the patients under our care follow the CDC recommendations given to the highest risk populations such as the elderly and those with other co-morbid conditions, which pose a greater risk of complications. Please check the CDC website for current updates.  

https://www.cdc.gov/coronavirus/2019-ncov/about

https://www.cdc.gov/coronavirus/2019-ncov/specific-groups/high-risk-complications.html

While it is suggested that COVID-19 may remain asymptomatic in pediatric population, we interpret this observation with extreme caution for the pediatric patients followed at our center, as the disorders we treat affect the immune system (either primary or as secondary), and in addition, many of these disorders have pulmonary involvement as well.     

We recommend social distancing, but we also would like to emphasize the importance of continuation of your therapy uninterrupted. Please contact the center where you receive your infusion treatments and inquire whether certain policies that may limit personal contact and duration of the time spent (such as private rooms, and availability of checking in and preparation of the medication in advance) are in place. Please note that we DO NOT recommend interrupting or skipping any treatments. For the patients who receive their treatments at our center, we will implement a triage system prior to the appointment by confirming that you do not have any symptoms such as chills, sore throat and cough or a history of known exposure to COVID-19. At the day of the appointment in addition, we will check your temperature before you enter the premises at the check- in station. If you have a fever, even low grade (for adults 99 degrees F, and for children 100 F and above), we will not be able to administer your treatment, and will refer you to your health care provider for further diagnosis and management.

If you are uncertain of your disease or immune status, please contact us at info@ldrtc.org or 1+703-261-6220, so that we can offer you guidance.

Respectfully,

 

Ozlem Goker-Alpan, M.D.

Lysosomal & Rare Disorders Research & Treatment Center (LDRTC)

Fairfax, VA

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3959 Pender Drive, Suite 100,
Fairfax VA 22030

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